Living with chemotherapy induced Peripheral Neuropathy

 

Three years ago I was diagnosed once again with breast cancer.  I had a mastectomy.  After surgery my treatment was oral  Exemestene – an anti-cancer hormone treatment not normally given to woman over eighty years old.      Two years of Exemestene and  the many serious  side-effects of this drug became so debilitating, the quality of my life so miserable,  I made the choice to stop treatment.

One of the unpleasant  side effects was painful burning and numbness in my feet and legs at night.  My feet became numb and I was having trouble walking, climbing stairs, anything relating to balance.  It was diagnosed as peripheral neuropathy.   I received little help from the oncology neurologist other than  suggesting  adding a B Multiple supplement  to the vitamin supplements I was taking.   This was the beginning of my extensive research on treatment of chemotherapy induced peripheral sensory neuropathy.

Courtesy Google I researched many North American  sites reporting positive results treating  people with  type two Diabetes with large amounts of Vitamin B 12 and Alpha laporic acid (an antioxidant, ) but little information on chemotherapy induced neuropathy.    The information I required was found  on Dutch and German medical sites.    I discussed the decision to add  vitamin B12 and alpha laporic acid to my supplement regime  with my family doctor and my nephrologist.

It has been just three months since I started taking B12 and alpha laporic acid and  I have been able to sleep with less burning pain.   Physiotherapists  gave me exercises to strength my feet and legs and  improve my balance.  Periperal Neuropathy weakens the muscles.   I’ve made major changes in my diet with  emphases on fresh fruits and vegetables and protein.     The  Foundation for Peripheral Neuropathy is an excellent source of information.  But, it is important to be your own advocate.    Do extensive research and question everything.  And most important to discuss your choices with your family doctor and not self diagnose.

On the most positive note  –  my research has improved the quality of life for my younger sister.  She has type two diabetes and  had never been diagnosed with peripheral neuropathy.  She discussed treatment with her physician and after adding vitamin B 12 and alpha laporic acid to her vitamin supplements  she ended years of suffering and has  absolutely no burning night pain in  her feet.

It is not my nature to be so open about something so intensely  personal.   Cancer has been my unwanted companion for eleven years.  If this experience helps just one person  that is what this post is about, and I will have made a difference for some one.

https://www.foundationforpn.org/

https://www.webmd.com/diabetes/peripheral-neuropathy-risk-factors-symptoms#1